Skip Navigation LinksGenetic Information Nondiscrimination Act (GINA)



What is GINA?

  • GINA is a federal law created in 2008 to protect individuals from genetic discrimination by their health insurance     and employers.

Who enforces GINA? 
  • ​Department of Labor
  • Department of the Treasury
  • Department of Health and Human Services
  • Equal Employment Opportunity Commission

What genetic information is protected under GINA
?
  • ​Family health history
  • Results of genetic testing
  • Use of genetic counseling and other genetic services
  • Participation in genetic research

​What
protections do you have under GINA? 
  • Under GINA, it is illegal for your health insurance to use genetic information to make decisions about eligibility, premiums, contribution amounts, or coverage terms for health insurance.
  • Under GINA, it is illegal for employers to use your genetic information to make decisions about hiring, firing, promotion or salary.

What isn't covered by GINA?
  • GINA does not protect against health insurers basing decisions about eligibility or coverage on current symptoms or diagnosis. 
  • While genetic testing results cannot be used as a pre-existing condition, if a person starts to show signs or symptoms of a disease, GINA does not stop health insurers from using that information to make decisions about a person's eligibility or coverage

​What health plans are covered under GINA?

  • GINA applies to most health insurers including plans you receive through your employer, plans you purchase on your own, and Medicare supplemental policies for those insured through Medicare.

Who isn't covered under GINA?

  • US military members who receive care through the Tricare military health system
  • Veterans who receive care though the Veteran's Administration
  • The Indian Health service
  • Federal employees who get care through the Federal Employees Health benefits plan     
  • Small businesses with less than 15 employees
  • Supplemental insurances:
    • Life insurance
    • Disability insurance
    • Long-term care

Where can you find more information about this?


Presenter: Kristen Pauley, CGC
Talk: Genetic Information Nondiscrimination Act (GINA)